Easter Celebration - Part 2 - San Mateo Central Park Egg Hunt

We took Aidan for his second egg hunt at Central Park today. This year, he could enjoy it a lot more than last year. Last year he was still so young, he couldn't appreciate the puppet show, or what those plastic eggs were all about. I remember when we exchanged the plastic eggs for a small bottle of bubbles, he was so scared of the bubbles that he wanted nothing to do with them. Such a big difference this year. Now, he's obsessed with bubbles! However, this year they changed the bubbles for a bag of bunny crackers. Speaking of the egg hunt, it was madness! We had to run alllll the way to the end of the park to find two eggs. Aidan was doing good running half-way through the park, until he realized he's too slow. So, I picked him up and carried him with me until we finally spotted some eggs. Hank and I basically had to surround the eggs ourselves so other kids and parents wouldn't snatch them away. Some kids left with a full basket of eggs (over 8), while others had a couple, or none. Mostly, it was the parents going crazy. No matter how many eggs you get, you still only get ONE bag of crackers!

After we had lunch, we went over to the hospital to visit Baby Logan. Aidan is always happy to go to the hospital. He knows that Logan is there, and he's sleeping. Despite not paying much attention to Logan after saying "Hi" to him, I know Aidan likes to be around Logan. I know he still has good memories of Logan when he's home with us. I remember Aidan watching the same clip of Logan sucking his lips and he would replay that many many times. I want that to be the memory that Aidan will have of Logan. Aidan also received a bucket full of Easter goodies from the hospital. I think the bucket was for Logan, but since Logan can't fully appreciate it and the nurse saw Aidan today, she gave it to Aidan. He was happy to carry it around with him, but didn't really care much about the contents. He's too obsessed with the laptop. We were able to keep him quiet at the hospital because of the laptop.

Watching the puppet show



Sitting by the curb, enjoying his apple slices, while waiting for the parade to start.



Waiting in line with millions of people for the egg hunt to begin.


Finally, we found eggs!! Yay!!



Aidan LOVES the parachute!!



Chilling with daddy at the gazebo. Hank is actually sitting on the Easter Bunny's chair, where the bunny takes pictures with kids. No bunny in sight though.

Easter Celebration - Part 1 - Preschool

I left the hospital early today so that I could head over to Aidan's preschool for his little party. Well, apparently most of the parents have to work, and I was the only one that showed up and brought Hank's raisin cookies for the class. A parent brought in juice for all kids earlier in the morning, and one brought in Matzo (gotta celebrate Passover, too). I was actually sad to see that only 3 parents signed up to bring something to school. Maybe Easter isn't such a big deal to many families. Or, maybe there are just too many events like this throughout the school year that parents get sick of doing it. To me, it's more like it's Aidan's first school event that I attended. I will try to attend as many as possible. Enjoy the pictures!

Aidan at story time. He was actually able to sit still, but couldn't resist playing with another kid.



Aidan put on his bunny hat, holding his paper bag, and ready for the Egg Hunt!



"Oooo... I found a green egg!!"



Enjoying cookies made by daddy and the grape juice brought in by another parent. He wasn't a big fan of the Matzo.



Aidan always likes to swing like a monkey outside, before heading into the car.

I'm glad I showed up at Aidan's school. I think he really likes seeing me there. I'm glad to show him that despite all that is happening, Mommy will always be there for him as well.

Logan's face always seems chubbier than the day before

*updated 10:00 p.m.
I was actually able to talk to the Director right before I left. The conversation was long and I'll write about the details in another post. Most importantly, the Lysosomal Storage Disease Genetic blood test came back NEGATIVE. Now we're only waiting for a few more tests for Mitochondrial disease. Logan also did not have a bacteria infection, as the culture did not show any growth. No more extra antibiotics or IV line for now.


Day 32 - Hospital Stay
Day 27 - Intubated

Just arrived at the hospital since I had a dentist appointment this morning. Will have many more appointments the next couple of weeks. I want to get them all done before Logan comes home. Because of stress, my teeth have been very sensitive and I was recommended to use a night guard. Obviously, I've been clenching my teeth really hard, even when it's not at night.

1:30 p.m. - Talked to nurse. Everything is about the same. I didn't see any new IV or central line. I guess they really couldn't get that in yesterday. Logan's cheeks for some reason, always seem chubbier to me every day. Maybe it's just me. His Ativan level has not changed, but he seems a lot sleepier today than yesterday. Yesterday, he kept on opening his eyes; today, he's been sleeping. He might move a little bit, but hasn't opened his eyes for me yet, even after changing his diaper. I am waiting for the Director to come in to talk to me. Aside from getting updates from him, I also want to ask him about the options presented to me. I want to get his 3rd opinion on what he thinks. He's been following Logan's case since he got here, even his last hospitalization, so he knows Logan pretty well.

4:00 p.m. - Mm... the Director still hasn't come in and talked to me. He seems pretty busy and I didn't want to bother him. I keep on hearing alarm sounding off in the other rooms, and there are a few new names on the board. Since Logan is stable, maybe I'll just ask him tomorrow. Weekends are usually quieter. I see him on the phone and in front of the computer a lot. Probably trying to get all the specialists before the weekend comes. Logan is still very sleepy. He almost opened his eyes once. The nurse measured his temperature earlier and it was a little high. He said he would measure it again later. If he still has a temperature, then he might give Logan some Tylenol. I hope he's not getting sick again. Or maybe he is, that's why he's so sleepy today, trying to fight off whatever it is. As long as he's stable, I am happy.

4:20 p.m.- Good, temperature went down a little to 98.7. Phew!

On the other hand, I am trying to look for Easter Egg Hunts for Aidan. We went to San Mateo Central Park last year for his first ever egg hunt. He seemed to have a lot of fun. This year he's a little older, and he could probably run and wrestle with the other kids, instead of me carrying him around. I still remember how "crazy" some of the parents were. I also need to buy the exact same chocolate bunny this year. I've been doing that the last three years, and took picture of Aidan next to it. It's interesting to see how he grows next to that chocolate bunny. I was also thinking, if they are not painting eggs at his preschool, maybe, just maybe, I will attempt to do that at home with Aidan. I hope he's older now and will be able to appreciate that. I just wish I don't create a big mess.