These posts are letters written to Logan, telling him how much we miss and love him, and what's going on in our lives. Logan was diagnosed with Leigh's Disease, an incurable Mitochondrial Disease. He left us on April 15, 2009, one day shy of turning 5 months old. We love and miss him so much.
Saturday, January 31, 2009
So far so good...
As mentioned in the previous post, two of Logan's blood test results came back, and I talked to the pulmonologist the following day on the phone. She reassured me that the red blood cell count was fine and he's not anemic. However, from the other test, it showed that Logan's oxygen level was too low, and the carbon dioxide level was too high. He's breathing too shallowly. The pulmonologist recommended to do another sleep test with him hooked up to the bipap machine. She said she's treated kids who are 6 months to a year old, who uses this machine at night when they sleep, and during the day, they function normally. I assume this is like the cpap machine that people with sleep apnea use at night (my brother has one of those). Unfortunately, the test has to be administered by a lead technician at the sleep center, and he's not available until March 17. For now, we'll just have to continue what we're doing. On a positive note, Logan's acid reflux seems to have gotten better. He doesn't gag or choke as much during his sleep, and is less agitated during feeding. I have also emailed his pediatrician to request the fading of one of his medicine, Reglan. I've read too many negative comments on this drug and all the negative side effects. This drug is pretty controversial. Since Logan has been taking it for 2 months, and he's getting better, I really want him to be off of it, just in case. The pediatrician is fine with the decision, and we're slowly weaning him off. Since he's been gaining weight steadily, he's probably outgrown that dosage anyway.
Aidan on the other hand has been very clingly at daycare and been acting like a baby. I guess that's the regression that I read about when a new sibling arrives. On a whole, he's been going. I am always amazed at his good memory and how much he actually understands these days. He's speaking a lot more, even though strangers might not always understand what he means yet. He made up this song about circle, squares and triangles. It was so cute and funny. Hank and I both set that as our cell phone ringtones. :)
Aidan also tried out his first big boy gym class yesterday. He has graduated from his parent/toddler class and now he's doing in all by himself. We had to switch his first class from a Saturday to a Friday because we got a birthday party to attend to today (Happy Birthday Baby Miles!). The class was really small, only 4 kids and Aidan was the youngest one. It seems like the others were 4 years old and he's only just turned 3. In the beginning, he would run over to me and explained to me what he did. Later on, he stopped doing it and actually listened to the teacher. He couldn't do many of the things that the teacher taught, but he's learning how to follow instructions. There were times he still ran all over the place and the teacher had to call him back to the group (this happened in his toddler class as well and they encouraged exploration of the gym in the class). However, every time the teacher called him back, he would come back and wouldn't put up a fight. The teacher joked that he was better than some 12-year olds! I am glad he started his new class with a smaller group of kids. It was a better transition and he got a little more attention. He did so much better than I expected and I am so proud of him! He's not a baby anymore, he's really a boy!
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