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Sunday, August 30, 2009

Origami Flowers

Hello Logan,

Mommy had an idea. Instead of buying fresh flowers for you each time, I could make origami flowers instead. I used to know how to make Lilies, but I am sure I can refresh my memory by watching the hundreds of YouTube clips like this one below.



Paper flowers might not smell as nice, but they are made by Mommy. Besides, they are cheaper and can last longer. I was thinking, I could even use the drawings and paintings that your brother brought home from school, and make flowers out of them. Then they will be presents from me and him. Usually I just threw his artwork away after I scanned them anyway.

What do you think? I think I am going to go do some shopping tomorrow and make you some!


Love you,
Mommy


p.s. Oh wait..but if they water the grass, then the flowers will all get wet. Mm...maybe I should use the foil type paper, or maybe the bright sun will dry the paper flowers and they will remain standing? I gotta try it out!

Wednesday, August 26, 2009

Brought back memories...

Hello Sweetheart,

Mommy had a client meeting earlier this afternoon. I was telling her that tomorrow she would be checking out a volunteer opportunity at Seton Medical Center. Her initial reaction was, sure. Then, she started getting emotional and shared that her aunt passed away at Seton last year. She told us that both her mother and aunt passed away last year, and it has been difficult to take the bus everyday passing by Seton Medical Center. Her life has changed so much within the last year, from living with her mother in Sacramento, to moving to the Bay Area. To staying home everyday, to going to a day program everyday. From not going anywhere, to being travel-trained and taking the bus everyday. She has made amazing progress and adjustments, yet she still misses her mother and aunt. When I heard what she had to say, I told her I understand how she feels, and it's OK if she doesn't want to volunteer there. We'll come up with other plans for her.

Of course I know how she feels. I feel the same way everyday I pass by the cemeteries on my way to work, and back home. Whenever I have to go to a hospital, whether it's Seton or Kaiser, or read stories about babies in NICU or PICU, or any baby suffering, I think of you. I didn't get emotional at the meeting, but stayed strong and supportive. Sometimes, I feel that I am not letting myself be emotional, or to grief. Life is too busy to grief. Mommy has always been a pretty happy-go-lucky person. And perhaps this personality has got me through these tough times. I see the good in people, and the good in situations. I am trying to see the positive.

Remember I told you that I stopped reading blogs about other griefing parents? I started doing that again. I feel that I am not mourning enough as it seems like my life has gone on. I've read about the hatred that some parents have towards others. I've read about all the different emotions that a new pregnancy has brought to a griefing parent. I don't necessarily agree or feel the same way, but I'd like to know how other griefing mothers are coping.

But sometimes, I wonder if I am in denial. I was reading about this article that a fellow Facebook friend/parent posted about Post-Traumatic Stress Disorder among parents with babies in the NICU. I didn't feel as fazzled or depressed as described in the article. I do remember all the dinging of the monitors at the hospital, the good news/bad news situation, and the several medical social workers that have so kindly talked to me but also confused me because there would almost be a different social worker each day.

Mommy still misses you everyday. It pains me everytime when I think of your face when you were in the hospital.


Miss you so much,
Mommy

Tuesday, August 25, 2009

Your brother is a Monk(ey)!

Hello Logan,

Did you enjoy the silly Hokey-Pokey dance that Mommy and Aidan did for you on Sunday? I know it was silly, but I want your brother to show you the new things he has learned in school. We're unable to stay for long because your brother was so tired. He actually told me he wanted to go home and sleep. He never wants to do that! Maybe it's the sun, or we had such a fun-filled weekend.



Last Saturday, we met up with Uncle Kyle, Auntie Leonor and Melanie at Kelley Park in San Jose. We had a nice time at the Japanese Garden, seeing ducks and fish, having a lovely picnic, running around and even playing soccer. Melanie and Aidan got along really well for the most part (until your brother threw the soccer ball in her face!!). I think the kids are feeling more comfortable around each other, and their parents. Daddy had to work, so he was unable to hang out with us.



I took your brother out for a haircut yesterday after school. I wanted to take him last Sunday, but since he was so tired, we didn't go. I picked a new haircut place in Palo Alto that's close to school. It's a super nice and kid-friendly place called Snip-its. It was a lot nicer than Kids Cuts and Kicks in San Bruno. But then, the price tag is higher as well. It was a good experience, though I think the hair was a little too short. He looks like a little monk!! But it's ok, his hair grows out fast. I think next time your brother can go to a regular haircut place, as he's not scared anymore.



Miss you,
Mommy

Wednesday, August 19, 2009

Don't let them take the pinwheels away!

Hello Logan,

Sorry about the quick visit today. My client's meeting ran overtime and I was in a hurry to pick up your brother from school, so I couldn't stay for long. I was able to retrieve the pinwheels from your door, and brought them to my car. I don't want the gardeners to take them away again. One of the reasons why I wanted to visit you today is to see if any other parents have taken away decorations left at other kids' places. When we come to visit you, we always see some kids have all these flowers, statues, balloons, pinwheels, and toys, and I always wonder if the parents come by every Wednesday to collect them before the mowing on Thursday. When I stopped by today at around 5:30 p.m., I still saw all the stuff around. Do the parents come later in the evening or early Thursday before the mowing begins, or do the gardeners not take away their things? I wonder! Remember last time Mommy left some pinwheels by your door and they took them away? I wonder if they do that to the other kids as well. We have never run into any parents when we visit you, so I was unable to ask. One time I thought I spotted a parent, but when I asked the man, he was just a friend visiting. The mystery!

Your brother has been doing very well with potty-training. He only had 2 daytime accidents so far, once at the San Mateo County Festival, and once at school. Now we're working on staying dry during naptime. He's going to graduate from the Jellyfish room to the Sea Otter room next month! That's the preschool class where all kids are potty-trained. Most of your brother's original classmates have graduated to that class already, including his best friend. I don't think your brother misses any of those friends (they still see each other quite a lot at the playground). But it would be nice to encourage him to use the potty more often, so that he can be in the big boy's class. Transition period will be from Sept 1-3. He will spend a few hours a day in the Sea Otter room. I don't forsee any problems, especially, he already knows the Head Teacher in that class. The Head Teacher was actually one of his teachers when Aidan first started preschool. This is going to be exciting!

Mommy might bring Aidan to come see you this weekend. Unfortunately, Daddy is on-call this week and has to be home all weekend.


Love you,
Mommy

Saturday, August 15, 2009

Babies are in the air...

Hi Logan,

Sorry Mommy hasn't been writing to you regularly. Work has been busy, esp. one of my staff is leaving next week, when I am already short-staff to begin with!

We came back from dim sum with some uncles and aunties. It was nice to see our friends again. Sometimes you get so caught up with family life that I don't make enough time for my friends. Daddy gets to see his friends at work, but Mommy has to make an effort to see them. We used to do dim sum about once a month, but it's been a while.

Remember Auntie Beverly is pregnant with twins? She's having twin girls! And then I found out that Auntie Melissa is pregnant with a baby girl as well. Talk about babies in the air! More and more of Mommy's friends are pregnant these days. I think it's because we're at that age. We passed the wedding phase, now it's the baby stage. Daddy is so jealous and really wants a baby girl. I wonder if a god-daughter will satisfy him. It was nice to see my mommy friends and talk about babies and pregnancy. I guess at one point, we ladies were so busy talking, the others were bored out of their minds. Oopsie! I guess we just need to make time to hang out more often, just the girls! Maybe a spa day with the girls....but then, we're trying to save money.

We're going to the San Mateo County Fair later today, after your brother got up from his nap. Daddy got free tickets from work. Now that it's summer, there are many fairs going on. Nice to be out in the sun.

The other day, Mommy was at Seton Medical Center to visit some clients who're volunteering, and to take one to see a doctor. When passing by the ICU and CCU, I couldn't help but think of our stay at Kaiser. I also noticed that Kaiser is a much nicer hospital. Probably because Kaiser is purely private, and Seton probably gets funding from the government. I hate going back to hospitals because of what we have gone through. But unfortunately, I can't help it, and we'll be seeing Kaiser more often when we move down south. I wonder if this feeling will ever go away.

Seeing babies and hearing news of babies make me miss you even more. Today is the 15th, that means you have left us for 4 months now. And of course, tomorrow you would have been 9 months old. We'll come see you tomorrow and maybe bring you a pinwheel. I could probably swing by your place next Wednesday to retrieve the pinwheel before mowing day. So, we'll see you tomorrow, ok?


Miss you,
Mommy

Sunday, August 9, 2009

A nice weekend of fun and car wash


Hi Logan,

Did you enjoy the beautiful weekend that we had? Such lovely weather, even in San Francisco. Mommy is really enjoying this weather, not too hot, not too cold. I just wish it'll last.

We spent Saturday on a playdate with your cousins Quincy and Ruby. You didn't get a chance to meet them, and your Uncle Eugene and Granduncle and aunt. Granduncle and aunt are visiting from Vegas, so we met up at the Exploratorium. You know what, it was you that actually brought us together. When you were sick, Granduncle was very supportive of us. He gave us valuable information and his expertise as a retired pediatrician. I was glad that you brought us closer together, just wish it was under better circumstances. We had a great time at the Exploratorium. It's your brother's first visit, and it's been a long time since I was there. We only checked out maybe 1/3 of the exhibits. Definitely need to visit again. Your brother didn't have much interaction with your cousins at the museum. However, during lunchtime, Quincy and Ruby were nice enough to show him their little Leapster video game system. I got to see your brother being patient and polite. I was proud to see that he definitely has matured. From the little that I've seen, I think Aidan likes hanging out with Quincy, since he's older. Or perhaps he just wants to play with the game.

Sunday was just a simple family day. We went to Church, playground, and lunch. Perfect weather for some playground fun. Today, I intentionally didn't remind your brother to use the potty as often. I wanted to see if he would go by himself. I am pleased to announce that he did initiate a few times. I even let him nap in his underwear (with extra blankets on his bed), with no pull-up. No accident!! I just had to make sure he used the potty before he went to bed.

One thing interesting that happened today was when we went to the car wash. Your brother was TERRIFIED of it. Last time he went was probably 6 months ago, and he was scared. Ever since that one time, he refused to go. When we told him we're going for a car wash, he immediately said no. While lining up to get in, he was already holding onto me and started tearing up. I explained to him that the car is getting a shower. Step-by-step, I explained how it's similar to when I was washing his hair, scratching his hair (like those massive spinning thingy), and rinsing off the soap. I reassured him that water would not get into the car and it wouldn't hurt him. He was still unsure. Once we got into the car wash, I explained everything again. With each step, I refer back how he took a shower. I even told him that Lightning McQueen gets a car wash too, and the spinning brushes were like McQueen's massage inside Mack the truck. I told him it's like brushing his teeth. I touched the window to show him that it's not wet and water couldn't get in. He was anxious, but he didn't cry. I think he accepted and believed my explanation. Whew...we got through it.

The weekend is over. Mommy has to get back to work again. It seems like it'll be warm and sunny for the next few days. Thank goodness, I am tired of the fog in Daly City.


Love you,
Mommy

Friday, August 7, 2009

Donations

Hi Logan,

Mommy packed up all of your medical supplies yesterday, and donated them to a bunch of other babies who needed them. I think the supplies include: a box of 3 ml syringes, a bag of 1 ml syringes, some big 30 ml and 60 ml syringes that we used when feeding you through the ng tube, 4-5 ng tubes, 6 Mead-Johnson Cleft Palate nursers, a stack of Tegaderm, and other little knick knacks. I finally went through all the stuff and gave them all away. We really have no use for them, and if some other kids can use them, that's great.

I met up with a mommy (kind of like a blind date) who is part of a feeding support group. I gave her everything, so that she could share with other mothers. I met with her 5-yr old son. Her son also has a suspected Mitochondrial disease, but they couldn't test which one specifically. He's been seen by this expert, Dr. Enns at Lucile Packard. I think the boy is in good hands. Dr. Enns is famous in the Genetics field, and I once wanted to get you transferred to Lucile Packard because of him. This little boy is developmentally delayed, has speech impairment, feeding issues, and ADHD. He is definitely a handful, but he's also so adorable. This mom also has another 11-month old son. It must be very difficult to take care of two young children.

We shared some stories and instantly felt a connection because of you little boys. It's amazing how strangers could meet up and started pouring their hearts out because of this special bond. I don't have much to offer, but to encourage and reassure her that everything would be fine. I told her that I work at The Arc, and that when her little boy grows up, he will be ok. There are many great agencies out there that will assist her son to be independent and self-sufficient. I am sure once you have a child with special needs, you start worrying about him for the rest of your life.

Am I lucky to not have to worry about you? Have you sacrificed yourself knowing our lives would never be the same because of your special needs? I told the mother how I wished your diagnosis was Down Syndrome, or Cerebal Palsy, or Autism, because at least, you would very likely still be here. However, you have Leigh's Syndrome. At least I know you're in a better place. I am confident that you are enjoying your days playing with little angels, so much better than a life with tubes and needles.

And you know what, Ah Gung and Ah Po sent you 10 more pinwheels in the mail. Some of them are very funny/interesting looking. I will definitely bring them to you next time.


Love you,
Mommy

Tuesday, August 4, 2009

Miss you

Hi Logan,

Mommy misses you a lot today. While updating my calendar on my Ipod Touch, I flipped through the photos I have of you. The more I see your cute little face, the more I miss you. Tears just kept flowing down the side of my face. Oh honey, it just doesn't get any easier. Weak moments like these, make me question whether I should do any grief counseling. But these moments don't last long. They come and go, and then I will be back to my normal self. Moments like these do not stop me from functioning. But also moments like these make me worry about my well-being.

I think I am fine. I just need to vent and tell you how much I miss you.


Miss you lots,
Mommy

Monday, August 3, 2009

I killed the fishies...

Hi Logan,

Mommy felt so bad. I killed the fishies. Yesterday at the Santa Clara County Fair, your brother won a fish by throwing ping-pong balls into little jars. He actually won at his 2nd of 5 throws. We then bought another fish that came with a container, since the first fish only came in a ziploc bag. I didn't want to carry the ziploc bag the whole time.



So we got the fishies home, and got nothing to feed them. This morning, I went out to get some fish food and fed them. I was thinking, maybe it's a good idea to start your brother in feeding the fishies twice a day, as his little responsibility. But after I got home from work, I saw the container turned really dirty, and I could barely see the fishies. I wasn't sure if it's because I put too much fish food in there, or it's their poop. I changed the water and that's what the problem was. After half an hour, both fishies died! Was it the tap water? Was it the fish food? Was it because they couldn't live in clean water? I don't know! I didn't have a chance to read up on how to care for fishies! I was so sad. I was worried your brother would see them when he came home, so I immediately hid them in the bathroom.


They are still alive in this picture

When Daddy and Aidan came home, I told Daddy that I killed the f-i-s-h, worried that your brother would ask about them. Luckily, out of sight is out of mind for him. He didn't ask about the fish at all. Daddy took care of the fishies by flushing them down the toilet. We're not really sure if that's the way to go. If it's not, we're sorry about it. Thankfully, your brother is more into playing the Wii and watching Lightning McQueen, than to ask me about his fish. Actually, he didn't care for the fish that much. He was more interested in throwing the ping pong balls.

Next time before we bring any pet home, such as, fish, birds, rabbits, I should really read about how to take care of them first. I didn't want to kill another animal again.

Oh honey, take care of those little fishies for me. Tell them I am sorry.


Love you,
Mommy

Sunday, August 2, 2009

Potty training

Dear Logan,

What a beautiful day today. Did you like the flowers that we brought you? Mommy brought two bundles and seemed to be a little much. I think your brother is used to visiting you these days, and also feels a little more comfortable running around the area, while checking out other children's pinwheels.

After visiting you, we met up with Melanie, Auntie Leonor and Uncle Kyle at the Santa Clara County Fair. I told your brother that we'll be seeing a ferris wheel and going to a summer fair, just like how we read in his book called "Summer". We had a great time playing different games, eating yummy food, aka ice-cream, and seeing different animals. It was a warm day, but not too bad. You know what the best part is? Your brother is potty-trained!

We have basically given up the hardcore potty-training on him. We tried that a few weekends ago and it didn't work very well. But then last Thursday, teacher said he was doing well at school and was dry most of the time, so we should try sending him to school in underwear. So on Friday, we made sure he used the potty before heading to school, as it's a 45-min ride. And guess what, since that day up until now, we haven't had any wet underwear!! That's THREE whole days! Aside from nap time and night time, he's totally in his underwear. We made sure we told him how proud we are of him, and he's been given special treats from school (two temporary tattoos) and at home (juice and ice-cream). I wish this will continue. I still ask him many times a day whether he needs to go to the potty or not, but most of the time he's able and willing to tell us when he needs to go. I guess what everyone says is true. When he's ready, he's ready. Really can't force him. I think your brother is really ready now. I am so proud of him.

That also means he's not a baby anymore. He always says "I'm a big kid now". I guess he's right. I am going to miss having a baby in my arms. Luckily, he still likes to kiss and hold him. The day when he thinks that Mommy embarrasses him, is the day that I'll be heartbroken.


Love you,
Mommy