Aidan continues to get better each day, slowly but steadily. He's lost another 80g, but it's Ok since he's been on IV and off IV a few times within the last 2.5 weeks. Hopefully he won't need the IV fluid (ever again!) and can get back into the habit of feeding. It never occurs to me that eating, breathing and swallowing is such hard work.
His oxygen level continues to be at the 30-35% level. At rounds, we discussed that it might be possible to slowly decrease Logan's oxygen assistance. Dr. K thinks that aside from Logan having one of his episodes, he basically doesn't require the extra help. In the end, he was reduced to 1 liter instead of 2 liters, and continues to monitor between 25-35%. The doctors tried to reduce it to 1 liter a week or ago, but in the end, they had to increase it back. Let's see if it'll be successful this time around.
He's already started his acid reflux medication, Reglan and Ronitidine. The doctor said he has to be on these meds for a few months. After that, we will need to consult the Pediatric Pulmonologist again to see if we need to do another bronchoscopy.
I did notice Logan being awake more and more, and eating better. A week or so ago, I would have to position his head a certain way, then stare at the monitor to make sure his oxygen level was ok, then stay at that position. At that time, moving his head could cause problems. At one point, his head had to be slightly tilted up. But lately, he could sleep in a neutral position. Today when we got there, I didn't have to specifically position his head a certain way.
As always, whether Logan can go home depends on him. All we could do is to make sure he eats, pees, poops and gains weight. Before I left the hospital today, we fed him 85 ml! He usually only eats between 45-60 ml, so if he keeps that up, he can gain back the weight he has lost the last few days.
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On the other hand, I went to Target and bought a Christmas tree. I am puzzled as to why all artificial Christmas tress are pre-lit these days. I just want a simple one with nothing fancy, that would stay up and won't fall apart. Unfortunately, I gave in and bought a pre-lit one because the price is right, and the other unlit one isn't very stable. I am afraid Aidan would just go and pull the whole tree down.
We'll probably put up the Christmas tree this weekend. Aidan really loves all the lights. I can sense that Logan would love them just as much, if only he can be home for Christmas to see them.
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