Aidan's all better and Logan is doing OK

Day 24 - Hospital Stay
Day 19 - Intubated

I spent the day with Aidan today. It's actually kind of nice to do that, since I don't get to do that as much these days. His fever is finally gone. He and I both slept from 8 p.m. to 7:30 a.m. It's been a while since he has slept this much. He was so tired last night after dinner, I immediately got him in bed after washing up. I took him to the park today. He hasn't been to Orange Park in a long time. We used to go there almost every weekend. He got to run around, play the swing and slide. I only let him run around for about 30 mins, because he's still recovering from his illness. We then went to lunch and did some shopping at Target. Came home and he went to nap. He's still napping at the moment (almost 2 hours).

The Director of PICU called me this morning to update me on Logan. It's so nice of him to take the initiative to call me. He told me the new drug didn't work to stimulate Logan's brain to breathe. They decreased the ventilator rate, but his blood gas showed that the CO2 level was on high, as if he's not exhaling enough. It's looking more and more likely that he will need a trach. He also told me that 2 of the blood tests for Mitochondrial disease came back, and they were normal. There were about 4 or 6 more, plus the new set of test for Lysosomal Storage Disease. We're still waiting on those. He has also decided to re-send a few other tests that Logan has done when he was in the NICU. These are all tests for genetic diseases, testing the enzymes, or the by products. Those new ones are sent to a lab at Kaiser, so the results should come back faster than the other specialized ones. I also asked him again about Logan's 4-month immunizations. We both think that it's best to put a hold on that. It's less likely for him to get infected when he's in the hospital, and we want to minimize variables before we have a diagnosis. He said he would check with the neurologist, but for now, we should wait. I received a call from a nurse from Daly City yesterday regarding the Synagis shot. The nurse said the season for RSV is almost over, and Logan doesn't need another shot. I asked the Director about it and he said he would check with the Kaiser in Santa Clara regarding whether they are still giving the shots at that facility. I also asked if he should get another MRI since things might change. The Director thinks if all the tests came back normal, then doing another MRI and follow-up appointments with specialists would be the way to go, so as to make sure nothing else comes up. But, if the blood tests show something, then it's not necessary to get a MRI now. We could wait for a little long as the doctors might be able to predict what other things would happen.

So we'll continue to wait. As mentioned before, I really don't know if I want to know what's going on. It's such a catch-22. To know the blood test results, it's like waiting for the death sentence in a way. Please continue praying for little Logan. I'll be back at the hospital tomorrow.