Day 20 - Hospital Stay
Day 15 - Intubated
Hank and I came to the hospital to visit Logan this afternoon. Aidan is hanging out at grandma's place for the day, probably walking up and down the stairs.
Update on Logan: Doctor told us that he's not doing his lung exercises anymore. He is still desatting and it's just better for him to rest and not stress his little body out. He desats even when he's not coughing or gagging. His caffeine level was good but it didn't seem to be helping with this respiration. So, they stopped it. On the other hand, the doctor noticed that his tummy was a little big yesterday. They did an x-ray on his tummy and noticed his colon a little dilated. A surgeon was called to check on it, no surgery is needed at this point. Because of this, they have stopped his feeding and he's put back on IV. They had to empty out the contents in his stomach and took his stool for culture, to make sure there's no infection. They did another x-ray today and his colon and tummy looked smaller. The doctor said it might be due to the sedation drugs that he's on, since he's been on it for so long. They changed his drug from Chloral Hydrate to Valium and not to Ativan. All this might also be one of the underlying factors of what's really going on with him, which at this point, we're unsure what that is.
It's very likely the blood test results will come back some time this week. We might, or might not know what's going on. Either way, we will have to sit down with all the specialists to figure out a plan and options. This is not a meeting that we're looking forward to.
Even with the ventilator, Logan still desats while we're here at the hospital. He wasn't coughing or gagging, his respiratory rate just went up really high and the monitor showed that his oxygen level went down. He's taking little breaths instead of big breaths again. It happened when he's awake as well. I was hoping his breathing would be fine when he's awake, and might just need the ventilator when he's sleeping. It didn't seem like it anymore. His condition seemed to have worsened overall. I am really hoping it's not a Mitochondrial disease, which is hitting other parts of the body now. Please, we need prayers.
1 comment:
Virginia, Don't be discouraged by the set-back. We all get tired sometimes. It's no different for Logan. He needs to recuperate. Let him take a "Lazy Day". The time will come when he is ready to be off the respirator. With him being sedated and bed resting all the time, his bowel and other body parts lacks exercise and movement. Things may be out of the oridinary at the mean time. If you think about it, it's more important to stabilize the achievement that he has established before challenging him further. Take a deep breath; have faith in yourself, you God and Logan. Love Peggy @ Seattle
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