Logan's face always seems chubbier than the day before

*updated 10:00 p.m.
I was actually able to talk to the Director right before I left. The conversation was long and I'll write about the details in another post. Most importantly, the Lysosomal Storage Disease Genetic blood test came back NEGATIVE. Now we're only waiting for a few more tests for Mitochondrial disease. Logan also did not have a bacteria infection, as the culture did not show any growth. No more extra antibiotics or IV line for now.


Day 32 - Hospital Stay
Day 27 - Intubated

Just arrived at the hospital since I had a dentist appointment this morning. Will have many more appointments the next couple of weeks. I want to get them all done before Logan comes home. Because of stress, my teeth have been very sensitive and I was recommended to use a night guard. Obviously, I've been clenching my teeth really hard, even when it's not at night.

1:30 p.m. - Talked to nurse. Everything is about the same. I didn't see any new IV or central line. I guess they really couldn't get that in yesterday. Logan's cheeks for some reason, always seem chubbier to me every day. Maybe it's just me. His Ativan level has not changed, but he seems a lot sleepier today than yesterday. Yesterday, he kept on opening his eyes; today, he's been sleeping. He might move a little bit, but hasn't opened his eyes for me yet, even after changing his diaper. I am waiting for the Director to come in to talk to me. Aside from getting updates from him, I also want to ask him about the options presented to me. I want to get his 3rd opinion on what he thinks. He's been following Logan's case since he got here, even his last hospitalization, so he knows Logan pretty well.

4:00 p.m. - Mm... the Director still hasn't come in and talked to me. He seems pretty busy and I didn't want to bother him. I keep on hearing alarm sounding off in the other rooms, and there are a few new names on the board. Since Logan is stable, maybe I'll just ask him tomorrow. Weekends are usually quieter. I see him on the phone and in front of the computer a lot. Probably trying to get all the specialists before the weekend comes. Logan is still very sleepy. He almost opened his eyes once. The nurse measured his temperature earlier and it was a little high. He said he would measure it again later. If he still has a temperature, then he might give Logan some Tylenol. I hope he's not getting sick again. Or maybe he is, that's why he's so sleepy today, trying to fight off whatever it is. As long as he's stable, I am happy.

4:20 p.m.- Good, temperature went down a little to 98.7. Phew!

On the other hand, I am trying to look for Easter Egg Hunts for Aidan. We went to San Mateo Central Park last year for his first ever egg hunt. He seemed to have a lot of fun. This year he's a little older, and he could probably run and wrestle with the other kids, instead of me carrying him around. I still remember how "crazy" some of the parents were. I also need to buy the exact same chocolate bunny this year. I've been doing that the last three years, and took picture of Aidan next to it. It's interesting to see how he grows next to that chocolate bunny. I was also thinking, if they are not painting eggs at his preschool, maybe, just maybe, I will attempt to do that at home with Aidan. I hope he's older now and will be able to appreciate that. I just wish I don't create a big mess.